February 17, 2017
WASHINGTON – U.S. Senator Roy Blunt (Mo.) yesterday cosponsored the bipartisan Advancing Care for Exceptional Kids Act, legislation to improve health outcomes and care coordination for children with complex medical conditions on Medicaid.
“We shouldn’t let unnecessary red tape prevent kids with complex medical conditions from getting the treatment they need,” Blunt said. “I’m proud to join my colleagues in cosponsoring this bipartisan bill, which relieves burdens on families by coordinating care. I’ll continue working to help sick children in Missouri and nationwide receive the quality care they deserve.”
The ACE Kids Act would make it possible for health care providers to coordinate care, lower costs, and improve quality outcomes for children with complex medical conditions on Medicaid who require specialized care.
About two-thirds of the three million children with complex medical conditions are covered by Medicaid, representing nearly 40 percent of Medicaid costs for children. These children have illnesses and conditions including cancer, congenital heart disease, cystic fibrosis, Down syndrome, and chronic health challenges from premature birth, which often require them to travel to another state to find treatment.
This bill would help hospitals coordinate and standardize care across state lines, ensuring our nation’s most vulnerable children receive seamless treatment. It would also ease the burden of government bureaucracy on families, establishing case managers to help them navigate the complicated, and often expensive, healthcare system.
Experts from the fields of pediatrics and family advocacy groups participated in drafting this important legislation with children in mind. If enacted, the ACE Kids Act will give children with complex medical conditions the opportunity to lead fuller, healthier lives.